Panepinto, Julie A.: search on Z-Library

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1

Sickle cell disease

Kato, Gregory J., Piel, Frédéric B., Reid, Clarice D., Gaston, Marilyn H., Ohene-Frempong, Kwaku, Krishnamurti, Lakshmanan, Smith, Wally R., Panepinto, Julie A., Weatherall, David J., Costa, Fernando

Journal:

Nature Reviews Disease Primers

Year:

2018

Language:

english

File:

PDF, 2.44 MB

english, 2018

2

Clinically meaningful measurement of pain in children with sickle cell disease

Myrvik, Matthew P., Brandow, Amanda M., Drendel, Amy L., Yan, Ke, Hoffmann, Raymond G., Panepinto, Julie A.

Journal:

Pediatric Blood & Cancer

Year:

2013

Language:

english

File:

PDF, 608 KB

english, 2013

3

Red blood cell transfusions during sickle cell anemia vaso-occlusive crises: a report from the magnesium in crisis (MAGiC) study

Hulbert, Monica L., Panepinto, Julie A., Scott, J. Paul, Liem, Robert I., Cook, Lawrence J., Simmons, Timothy, Brousseau, David C.

Journal:

Transfusion (Elsevier)

Year:

2017

Language:

english

File:

PDF, 234 KB

english, 2017

4

Neuropathic pain in patients with sickle cell disease

Brandow, Amanda M., Farley, Rebecca A., Panepinto, Julie A.

Journal:

Pediatric Blood & Cancer

Year:

2014

Language:

english

File:

PDF, 171 KB

english, 2014

5

Clinical meaning of PROMIS pain domains for children with sickle cell disease

Singh, Ashima, Panepinto, Julie A.

Journal:

Year:

2019

File:

PDF, 822 KB

2019

6

Ambulatory quality indicators to prevent infection in sickle cell disease

Beverung, Lauren M., Brousseau, David, Hoffmann, Raymond G., Yan, Ke, Panepinto, Julie A.

Journal:

American Journal of Hematology

Year:

2014

Language:

english

File:

PDF, 427 KB

english, 2014

7

Attitudes Regarding Fertility Preservation in Female Adolescent Cancer Patients

Burns, Karen C., Boudreau, Christian, Panepinto, Julie A.

Journal:

Journal of Pediatric Hematology/Oncology

Year:

2006

Language:

english

File:

PDF, 102 KB

english, 2006

8

A Comparison of Pain Assessment Measures in Pediatric Sickle Cell Disease

Myrvik, Matthew P., Drendel, Amy L., Brandow, Amanda M., Yan, Ke, Hoffmann, Raymond G., Panepinto, Julie A.

Journal:

Journal of Pediatric Hematology/Oncology

Year:

2015

Language:

english

File:

PDF, 215 KB

english, 2015

9

Can PROMIS domains of pain and physical functioning detect changes in health over time for children with sickle cell disease?

Singh, Ashima, Dasgupta, Mahua, Simpson, Pippa M., Brousseau, David C., Panepinto, Julie A.

Journal:

Pediatric Blood & Cancer

Year:

2020

Language:

english

File:

PDF, 285 KB

english, 2020

10

Family Engagement in Pediatric Sickle Cell Disease Visits

Cox, Elizabeth D., Swedlund, Matthew P., Young, Henry N., Moreno, Megan A., Schopp, Jennifer M., Rajamanickam, Victoria, Panepinto, Julie A.

Journal:

Health Communication

Year:

2016

Language:

english

File:

PDF, 878 KB

english, 2016

11

The Performance of the PedsQL Generic Core Scales in Children With Sickle Cell Disease

Panepinto, Julie A., Pajewski, Nicholas M., Foerster, Lisa M., Hoffmann, Raymond G.

Journal:

Journal of Pediatric Hematology/Oncology

Year:

2008

Language:

english

File:

PDF, 123 KB

english, 2008

12

Hydroxycarbamide in Children with Sickle Cell Anemia After First-dose Vs. Chronic Therapy: Pharmacokinetics and Predictive Models for Drug Exposure

Estepp, Jeremie H., Wiczling, Paweł, Moen, Joseph, Kang, Guolian, Mack, Joana Marie, Liem, Robert, Panepinto, Julie A., Garg, Uttam, Kearns, Gregory, Neville, Kathleen A.

Journal:

British Journal of Clinical Pharmacology

Year:

2017

Language:

english

File:

PDF, 408 KB

english, 2017

13

Youth Victims of Violence Report Worse Quality of Life Than Youth With Chronic Diseases

Levas, Michael N., Melzer-Lange, Marlene, Tarima, Sergey, Beverung, Lauren M., Panepinto, Julie

Journal:

Pediatric Emergency Care

Year:

2018

Language:

english

File:

PDF, 146 KB

english, 2018

14

Variation in hospitalizations and hospital length of stay in children with vaso-occlusive crises in sickle cell disease

Julie A. Panepinto, David C. Brousseau, Cheryl A. Hillery, J. Paul Scott

Journal:

Pediatric Blood & Cancer

Year:

2005

Language:

english

File:

PDF, 77 KB

english, 2005

15

Development of the PedsQL™ sickle cell disease module items: qualitative methods

Julie A. Panepinto, Sylvia Torres, James W. Varni

Journal:

Quality of Life Research

Year:

2012

Language:

english

File:

PDF, 838 KB

english, 2012

16

PedsQL™ sickle cell disease module: Feasibility, reliability, and validity

Panepinto, Julie A., Torres, Sylvia, Bendo, Cristiane B., McCavit, Timothy L., Dinu, Bogdan, Sherman-Bien, Sandra, Bemrich-Stolz, Christy, Varni, James W.

Journal:

Pediatric Blood & Cancer

Year:

2013

Language:

english

File:

PDF, 97 KB

english, 2013

17

Impact of Family Income and Sickle Cell Disease on the Health-Related Quality of Life of Children

Julie A. Panepinto, Nicholas M. Pajewski, Lisa M. Foerster, Svapna Sabnis and Raymond G. Hoffmann

Journal:

Quality of Life Research

Year:

2009

Language:

english

File:

PDF, 1.17 MB

english, 2009

18

Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module

Julie A. Panepinto,J. Paul Scott…

Journal:

Health and Quality of Life Outcomes

Year:

2017

Language:

english

File:

PDF, 1.06 MB

english, 2017

19

A Prospective Study of Parent Health-Related Quality of Life before and after Discharge from the Neonatal Intensive Care Unit

McAndrew, Sarah, Acharya, Krishna, Westerdahl, Jacqueline, Brousseau, David C., Panepinto, Julie A., Simpson, Pippa, Leuthner, Jonathan, Lagatta, Joanne M.

Journal:

The Journal of Pediatrics

Year:

2019

File:

PDF, 366 KB

2019

20

Acute Idiopathic Thrombocytopenic Purpura of Childhood-Diagnosis and Therapy

Panepinto, Julie A., Brousseau, David C.

Journal:

Pediatric Emergency Care

Year:

2005

Language:

english

File:

PDF, 100 KB

english, 2005

21

Improvement in quality of life among violently injured youth following a brief intervention

Levas, Michael N, Boyle, Emmalee A, Melzer-Lange, Marlene, Panepinto, Julie

Journal:

Journal of Trauma and Acute Care Surgery

Year:

2016

Language:

english

File:

PDF, 1.59 MB

english, 2016

22

Child and parent preferences for graphical display of patient-reported outcome data

Dobrozsi, Sarah, Panepinto, Julie

Journal:

Pediatric Blood & Cancer

Year:

2017

Language:

english

File:

PDF, 713 KB

english, 2017

23

Impact of pediatric cancer on family relationships

Erker, Craig, Yan, Ke, Zhang, Liyun, Bingen, Kristin, Flynn, Kathryn E., Panepinto, Julie

Journal:

Cancer Medicine

Year:

2018

Language:

english

File:

PDF, 83 KB

english, 2018

24

Integration of electronic patient-reported outcomes (ePROs) into pediatric clinic settings across hematology/oncology/bone marrow transplant.

Myrvik, Matthew P., Beverung, Lauren M., Panepinto, Julie A., Igler, Eva C., Englebert, Nicole, Bingen, Kristin M.

Journal:

Clinical Practice in Pediatric Psychology

Year:

2014

Language:

english

File:

PDF, 769 KB

english, 2014

25

A trial of unrelated donor marrow transplantation for children with severe sickle cell disease

Shenoy, Shalini, Eapen, Mary, Panepinto, Julie A., Logan, Brent R., Wu, Juan, Abraham, Allistair, Brochstein, Joel, Chaudhury, Sonali, Godder, Kamar, Haight, Ann E., Kasow, Kimberly A., Leung, Kathryn

Journal:

Year:

2016

Language:

english

File:

PDF, 694 KB

english, 2016

26

Testing the feasibility of eliciting preferences for health states from adolescents using direct methods

Crump, R. Trafford, Lau, Ryan, Cox, Elizabeth, Currie, Gillian, Panepinto, Julie

Journal:

Year:

2018

Language:

english

File:

PDF, 857 KB

english, 2018

27

A user guide to the American Society of Hematology clinical practice guidelines

Izcovich, Ariel, Cuker, Adam, Kunkle, Robert, Neumann, Ignacio, Panepinto, Julie, Pai, Menaka, Seftel, Matthew, Cheung, Matthew C., Lottenberg, Richard, Byrne, Michael, Plovnick, Robert, Terrell, Deir

Journal:

Year:

2020

File:

PDF, 1.22 MB

2020

28

The Effect of CYP2D6 Polymorphisms on the Response to Pain Treatment for Pediatric Sickle Cell Pain Crisis

David C. Brousseau, D. Gail McCarver, Amy L. Drendel, Karthika Divakaran, Julie A. Panepinto

Journal:

The Journal of Pediatrics

Year:

2007

Language:

english

File:

PDF, 101 KB

english, 2007

29

Clinical Interpretation of Quantitative Sensory Testing as a Measure of Pain Sensitivity in Patients With Sickle Cell Disease

Brandow, Amanda M., Panepinto, Julie A.

Journal:

Journal of Pediatric Hematology/Oncology

Year:

2016

Language:

english

File:

PDF, 180 KB

english, 2016

30

Severe Thrombocytopenia in a Child Secondary to Passive Platelet Antibody Transfer from a Plasma Transfusion

Collins, Chelsea L., Scott, J. Paul, Panepinto, Julie A., Punzalan, Rowena C.

Journal:

Journal of Pediatric Hematology/Oncology

Year:

2013

Language:

english

File:

PDF, 112 KB

english, 2013

31

Laparoscopic versus open abdominal surgery in children with sickle cell disease is associated with a shorter hospital stay

Trudie Goers, Julie Panepinto, Michael DeBaun, Morey Blinder, Robert Foglia, Keith T. Oldham, Joshua J. Field

Journal:

Pediatric Blood & Cancer

Year:

2008

Language:

english

File:

PDF, 98 KB

english, 2008

32

Vaso-occlusive painful events in sickle cell disease: Impact on child well-being

Amanda M. Brandow, David C. Brousseau, Nicholas M. Pajewski, Julie A. Panepinto

Journal:

Pediatric Blood & Cancer

Year:

2010

Language:

english

File:

PDF, 131 KB

english, 2010

33

Health-related quality of life in children with sickle cell disease: child and parent perception

Julie A. Panepinto, Kerry M. O'Mahar, Michael R. DeBaun, Fausto R. Loberiza, J. P. Scott

Journal:

British Journal of Haematology

Year:

2005

Language:

english

File:

PDF, 101 KB

english, 2005

34

A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease

Julie A Panepinto, Raymond G Hoffmann, Nicholas M Pajewski

Journal:

Health and Quality of Life Outcomes

Year:

2009

Language:

english

File:

PDF, 934 KB

english, 2009

35

Mental health disorders influence admission rates for pain in children with sickle cell disease

Myrvik, Matthew P., Burks, Lisa M., Hoffman, Raymond G., Dasgupta, Mahua, Panepinto, Julie A.

Journal:

Pediatric Blood & Cancer

Year:

2013

Language:

english

File:

PDF, 111 KB

english, 2013

36

3245 Comparison of Health Outcomes in Adolescent and Young Adult (AYA) Oncology Patients Treated at a Pediatric versus Adult Institute

Moskop, Amy, Panepinto, Julie, Dobrozsi, Sadie

Journal:

Journal of Clinical and Translational Science

Year:

2019

Language:

english

File:

PDF, 59 KB

english, 2019

37

Intravenous magnesium for pediatric sickle cell vaso-occlusive crisis: Methodological issues of a randomized controlled trial

Badaki-Makun, Oluwakemi, Scott, J. Paul, Panepinto, Julie A., Casper, T. Charles, Hillery, Cheryl A., Dean, J. Michael, Brousseau, David C.

Journal:

Pediatric Blood & Cancer

Year:

2014

Language:

english

File:

PDF, 142 KB

english, 2014

38

Identification and Validation of a Sickle Cell Disease Cohort Within Electronic Health Records

Michalik, Daniel E., Taylor, Bradley W., Panepinto, Julie A.

Journal:

Academic Pediatrics

Year:

2017

Language:

english

File:

PDF, 240 KB

english, 2017

39

Pathophysiology of Stroke in Sickle Cell Disease

Hillery, Cheryl A., Panepinto, Julie A.

Journal:

Microcirculation

Year:

2004

Language:

english

File:

PDF, 512 KB

english, 2004

40

Children and adolescents with sickle cell disease have worse cold and mechanical hypersensitivity during acute painful events

Brandow, Amanda M., Hansen, Karla, Nugent, Melodee, Pan, Amy, Panepinto, Julie A., Stucky, Cheryl L.

Journal:

Year:

2019

File:

PDF, 489 KB

2019

41

The impact of a multidisciplinary pain management model on sickle cell disease pain hospitalizations

Amanda M. Brandow, Steven J. Weisman, Julie A. Panepinto

Journal:

Pediatric Blood & Cancer

Year:

2011

Language:

english

File:

PDF, 135 KB

english, 2011

42

Early insights into the neurobiology of pain in sickle cell disease: A systematic review of the literature

Brandow, Amanda M., Farley, Rebecca A., Panepinto, Julie A.

Journal:

Pediatric Blood & Cancer

Year:

2015

Language:

english

File:

PDF, 105 KB

english, 2015

43

End points for sickle cell disease clinical trials: renal and cardiopulmonary, cure, and low-resource settings

Farrell, Ann T., Panepinto, Julie, Desai, Ankit A., Kassim, Adetola A., Lebensburger, Jeffrey, Walters, Mark C., Bauer, Daniel E., Blaylark, Rae M., DiMichele, Donna M., Gladwin, Mark T., Green, Nancy

Journal:

Year:

2019

File:

PDF, 994 KB

2019

44

Matched-related donor transplantation for sickle cell disease: report from the Center for International Blood and Transplant Research

Julie A. Panepinto, Mark C. Walters, Jeanette Carreras, Judith Marsh, Christopher N. Bredeson, Robert Peter Gale, Gregory A. Hale, John Horan, Jill M. Hows, John P. Klein, Ricardo Pasquini, Irene Robe

Journal:

British Journal of Haematology

Year:

2007

Language:

english

File:

PDF, 489 KB

english, 2007

45

Health-related Quality of Life in Infants With Sickle Cell Disease

Beverung, Lauren M., Bemrich-Stolz, Christina, Torres, Sylvia, Panepinto, Julie A.

Journal:

Journal of Pediatric Hematology/Oncology

Year:

2015

Language:

english

File:

PDF, 143 KB

english, 2015

46

Assessment of pediatric asthma exacerbation with the use of new PROMIS measures

Nelson, Amanda, Singh, Ashima, Dasgupta, Mahua, Simpson, Pippa M., Chiu, Asriani, Brousseau, David C., Panepinto, Julie A.

Journal:

Journal of Asthma

Year:

2020

File:

PDF, 770 KB

2020

47

The effect of parental mental health on proxy reports of health-related quality of life in children with sickle cell disease

Julie A. Panepinto, Raymond G. Hoffmann, Nicholas M. Pajewski

Journal:

Pediatric Blood & Cancer

Year:

2010

Language:

english

File:

PDF, 178 KB

english, 2010

48

The effect of acute pain crisis on exhaled nitric oxide levels in children with sickle cell disease

Sachin S. Pawar, Julie A. Panepinto, David C. Brousseau

Journal:

Pediatric Blood & Cancer

Year:

2008

Language:

english

File:

PDF, 103 KB

english, 2008

49

Identifying existing Choosing Wisely recommendations of high relevance and importance to hematology

Hicks, Lisa K., Rajasekhar, Anita, Bering, Harriet, Carson, Kenneth R, Kleinerman, Judith, Kukreti, Vishal, Ma, Alice, Mueller, Brigitta U., O'Brien, Sarah H., Panepinto, Julie A., Pasquini, Marcelo C

Journal:

American Journal of Hematology

Year:

2016

Language:

english

File:

PDF, 393 KB

english, 2016

50

Parents’ pain medication underdosing is associated with more emergency department visits in sickle cell disease

Morrison, Andrea K., Myrvik, Matthew P., Brousseau, David C., Drendel, Amy L., Scott, J. Paul, Visotcky, Alexis, Panepinto, Julie A.

Journal:

Pediatric Blood & Cancer

Year:

2017

Language:

english

File:

PDF, 389 KB

english, 2017

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